Blogs - Pulse Infoframe Inc.

Jul 09

Pulse Infoframe and Timothy Syndrome Alliance (TSA) to Present New Poster at Genomics England Research Summit

London On. July 9th – The Timothy Syndrome Alliance (TSA) and Pulse Infoframe will present a new poster at the Genomics England Research Summit today in London, UK. The presentation will showcase real-world data generated from the CACNA1C Community Registry, launched in June 2022. This registry aims to better... read more →

July 9, 2024
Ryan Sheedy
News

May 01

Pulse Infoframe Announces Poster Presentation at ISPOR 2024

London On. –May 1st 2024- Pulse Infoframe, an industry leader in global patient registries and real-world evidence generation has announced today that their abstract for a poster presentation has been accepted for ISPOR 2024 taking place May 5th-8th 2024 in Atlanta Georgia and virtually. ISPOR 2024 is the leading global... read more →

May 1, 2024
Ryan Sheedy
News

Apr 15

Pulse Infoframe Announces New Scientific Advisory Board, Further Advancing Real-World Evidence Generation Across Pharma Industry

London, Canada, April 15th, 2024— Pulse Infoframe, is delighted to announce the establishment of its Scientific Advisory Board (SAB). This distinguished board will further bolster and refine Pulse Infoframe’s clinical and scientific direction, particularly emphasizing the pivotal role of real-world data (RWD) in the development of novel therapies. ... read more →

April 15, 2024
Ryan Sheedy
News

Feb 08

Advancing GM2 Gangliosidosis Research: A Revolutionary Approach to Real-World Data Collection

Poster presentation at 20th World Symposium: A paradigm shift in collecting RWD for GM2 gangliosidosis. Collecting real-world data (RWD) for rare diseases, particularly GM2 gangliosidosis, has historically posed challenges. However, a recent shift in the approach to RWD collection effectively led by Pulse Infoframe fosters a more collaborative and comprehensive... read more →

February 8, 2024
Ryan Sheedy
Blog, Uncategorized

Jul 21

Endo Announces First Patient Enrolled in Registry of Peyronie’s Disease

DUBLIN, July 17, 2023 – Endo International plc (OTC: ENDPQ) announced today that the first patient has been enrolled in CURVE-PD (Clinical Understanding through Real-world data to Validate Effectiveness of treatments in Peyronie’s disease), a non-interventional registry of up to 1,000 patients with Peyronie’s disease (PD). This registry will create the... read more →

July 21, 2023
Ryan Sheedy
News

Jun 30

Endo Announces First Patient Enrolled in Registry of Dupuytren’s Contracture

DUBLIN, June 26, 2023 /PRNewswire/ -- Endo International plc (OTC: ENDPQ) announced today that the first patient has been enrolled in GRASP-DC (Generating Real-world Ambispective data to Study Participant Treatment outcomes for Dupuytren's Contracture), a non-interventional registry of up to 1,000 patients with Dupuytren's contracture (DC). This registry will create... read more →

June 30, 2023
Ryan Sheedy
News

Mar 02

A Variation of CACNA1C, a Rainbow of Faces, and a Love of Books: Ollie’s Story

Every parent loves to watch their child fly like a butterfly and discover the world. Although five-year-old Ollie’s variation of CACNA1C means he is developmentally one year old, he plays independently, attends half-days at school, and loves books, especially ones that contain faces. “Ollie loves people, he loves faces,” says... read more →

Feb 27

New Global Kidney Platform Where All Participants Have an Equal Voice Now Available

Organizations Focused on Kidney Research Now Have Access to Single, Compliant Platform to Accelerate Discovery of Lifesaving Treatments for Kidney Community March 1, 2023, London, Ontario, Canada—Pulse Infoframe is expanding its kidney initiative into a collaborative global kidney platform. This initiative will leverage the company’s existing kidney platform, which has... read more →

February 27, 2023
Techdoz Support
News

Feb 17

Oncology Registries: A Look Into the Insights Collected

As our February newsletter has highlighted, collecting real-world oncology data to produce regulatory-compliant and reproducible evidence for your medical research is possible. The Pulse Platform Our modular-by-design platform enables you to address your study’s research questions in the following ways: By accessing existing de-identified data sets from our ongoing registries,... read more →

February 17, 2023
Techdoz Support
Article

Nov 07

Pulse Infoframe Initiates Patient Advisory Board to Strengthen Patient Voice in Real-World Research

PAB Members Have Both Experience in Healthcare and Patient Advocacy October 27, 2022, London, Ontario, Canada—To enhance the patient voice in real-world studies, Pulse Infoframe, a company that specializes in real-world data (RWD) and evidence (RWE), announces the creation of a patient advisory board (PAB). The PAB held its first... read more →

November 7, 2022
Ryan Sheedy
News

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