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Mar 05

From Patient Voices to Breakthrough Therapies: The Vital Role of the CDKL5 Registry in Drug Development and Patient Care

Patient centric research is our passion In today's healthcare landscape, the patient voice has become an essential component of real-world research. Platforms like the CDKL5 Registry exemplify this shift, capturing invaluable patient and caregiver insights to inform study design and shape more effective treatments. Researchers design studies that incorporate patient... read more →
Jan 13

Pulse Infoframe is pleased to announce their posters to be presented at the 2025 WORLD Symposium

  London Can. –January 13th 2025- Pulse Infoframe, an industry leader in global patient registries and real-world evidence generation has announced today that their three abstracts submitted to the WORLDSymposium have been accepted and will be presented February 3rd-7th 2025 in San Diego. WORLD (We’re Organizing Research on Lysosomal Diseases) is the... read more →
Jul 09
May 01
Apr 15

Pulse Infoframe Announces New Scientific Advisory Board, Further Advancing Real-World Evidence Generation Across Pharma Industry

  London, Canada, April 15th, 2024— Pulse Infoframe, is delighted to announce the establishment of its Scientific Advisory Board (SAB). This distinguished board will further bolster and refine Pulse Infoframe’s clinical and scientific direction, particularly emphasizing the pivotal role of real-world data (RWD) in the development of novel therapies.  ... read more →
Feb 08

Advancing GM2 Gangliosidosis Research: A Revolutionary Approach to Real-World Data Collection

Poster presentation at 20th World Symposium: A paradigm shift in collecting RWD for GM2 gangliosidosis. Collecting real-world data (RWD) for rare diseases, particularly GM2 gangliosidosis, has historically posed challenges. However, a recent shift in the approach to RWD collection effectively led by Pulse Infoframe fosters a more collaborative and comprehensive... read more →
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Feb 27

New Global Kidney Platform Where All Participants Have an Equal Voice Now Available

Organizations Focused on Kidney Research Now Have Access to Single, Compliant Platform to Accelerate Discovery of Lifesaving Treatments for Kidney Community  March 1, 2023, London, Ontario, Canada—Pulse Infoframe is expanding its kidney initiative into a collaborative global kidney platform. This initiative will leverage the company’s existing kidney platform, which has... read more →