We Do Data Right.

Posters, Infographics & Case Studies

Posters

Read about the next generation of pediatric narcolepsy studies.

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Read about how additional datasets were added to a pre-existing CDKL5 patient registry through the use of a global unique identifier (GUID).

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Discover the insights gathered from the POTENT study on EGFR mutations in NSCLC.

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Read about how PIP-UK and Pulse Infoframe enabled rapid recruitment to the Poland Syndrome Community Register.

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Read about the latest insights from pediatric narcolepsy studies.

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Read about the creation of the first patient registry for Birt-Hogg-Dubé (BHD) syndrome.

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Infographics

What’s next for the CDKL5 Registry?

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The journey to-date of the CDKL5 Registry.

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A rare community united for common good.

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Learn more about the Poland Syndrome Community Register, collecting data since 2021.

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Discover the journey that drugs undergo from discovery to approval, plus how real-world data and evidence can help.

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Everything you need to know about BIRT, the Birt-Hogg-Dubé Syndrome International Registry.

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Case-Studies

Learn about the best ways to recruit participants for your patient registry.

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