Video FAQs

Who is Pulse Infoframe?
What is the value of an evidence platform?
How do you ensure patient data and information is secure?
What are the challenges associated with having global registries?
What happens to a registry and the data if fundraising runs out?
What are the advantages of Rare Central’s centralized data platform?
How many people do you need to start a registry?
What is a data dictionary and why are they important?
How long will it take to create a registry or migrate an existing one?
What registries exist for my condition and how can I be connected to them?
What does the term co-use of data mean?
How does the Pulse registry platform support precision medicine?