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Pulse Infoframe Inc. / Archive by Category Uncategorized

From Patient Voices to Breakthrough Therapies: The Vital Role of the CDKL5 Registry in Drug Development and Patient Care

Patient centric research is our passion In today's healthcare landscape, the patient voice has become an essential component of real-world research. Platforms like the CDKL5 Registry exemplify this shift, capturing... read more →

March 5, 2025
Ryan Sheedy
Blog, Uncategorized

Advancing GM2 Gangliosidosis Research: A Revolutionary Approach to Real-World Data Collection

Poster presentation at 20th World Symposium: A paradigm shift in collecting RWD for GM2 gangliosidosis. Collecting real-world data (RWD) for rare diseases, particularly GM2 gangliosidosis, has historically posed challenges. However,... read more →

February 8, 2024
Ryan Sheedy
Blog, Uncategorized

2024 Pulse Infoframe Inc.

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