Every parent loves to watch their child fly like a butterfly and discover the world. Although five-year-old Ollie’s variation of CACNA1C means he is developmentally one year old, he plays... read more →
Organizations Focused on Kidney Research Now Have Access to Single, Compliant Platform to Accelerate Discovery of Lifesaving Treatments for Kidney Community March 1, 2023, London, Ontario, Canada—Pulse Infoframe is expanding... read more →
As our February newsletter has highlighted, collecting real-world oncology data to produce regulatory-compliant and reproducible evidence for your medical research is possible. The Pulse Platform Our modular-by-design platform enables you... read more →
by Dr. Femida Gwadry-Sridhar Have you ever considered the connection between drug development for rare diseases and olive trees in Italy? I assure you, there is one. In September, I... read more →
Remote Participation Model Allows People to Enroll from Almost Anywhere in the World August 8th 2022, London, Ontario, Canada—Children with pediatric narcolepsy and their caregivers can now take part in a... read more →
A Collaborative Partnership to Develop the CDKL5 Registry CDKL5 Deficiency Disorder (CDD) is a rare developmental encephalopathy with epilepsy that is caused by mutations in the CDKL5 gene. CDD can... read more →
Timothy Syndrome Alliance and Pulse Infoframe are pleased to announce that the CACNA1C Community Registry is open for worldwide recruitment. The registry will aid in research for Timothy Syndrome, non-syndromic... read more →
https://youtu.be/alcE_FiOkAc Pulse Infoframe | Femida Gwadry-Sridhar, Founder & CEODr. Femida Gwadry-Sridhar is the founder and chief executive officer of Pulse Infoframe. Dr. Gwadry-Sridhar is a pharmacist, epidemiologist and methodologist with... read more →
You would think that, after 22 years in the U.S. Navy, a veteran deserves a break. But like a baseball game, life doesn’t go as planned for many, and it... read more →
The Myrovlytis Trust, BHD Foundation, and Pulse Infoframe are pleased to announce that the BHD International Registry is open for recruitment. What Is Birt-Hogg-Dubé Syndrome? Birt-Hogg-Dubé (BHD) syndrome is a... read more →
