Patient centric research is our passion In today's healthcare landscape, the patient voice has become an essential component of real-world research. Platforms like the CDKL5 Registry exemplify this shift, capturing... read more →
London Can. –January 13th 2025- Pulse Infoframe, an industry leader in global patient registries and real-world evidence generation has announced today that their three abstracts submitted to the WORLDSymposium have... read more →
London On. July 9th – The Timothy Syndrome Alliance (TSA) and Pulse Infoframe will present a new poster at the Genomics England Research Summit today in London, UK. The... read more →
London On. –May 1st 2024- Pulse Infoframe, an industry leader in global patient registries and real-world evidence generation has announced today that their abstract for a poster presentation has been... read more →
London, Canada, April 15th, 2024— Pulse Infoframe, is delighted to announce the establishment of its Scientific Advisory Board (SAB). This distinguished board will further bolster and refine Pulse Infoframe’s... read more →
Poster presentation at 20th World Symposium: A paradigm shift in collecting RWD for GM2 gangliosidosis. Collecting real-world data (RWD) for rare diseases, particularly GM2 gangliosidosis, has historically posed challenges. However,... read more →
DUBLIN, July 17, 2023 – Endo International plc (OTC: ENDPQ) announced today that the first patient has been enrolled in CURVE-PD (Clinical Understanding through Real-world data to Validate Effectiveness of treatments... read more →
DUBLIN, June 26, 2023 /PRNewswire/ -- Endo International plc (OTC: ENDPQ) announced today that the first patient has been enrolled in GRASP-DC (Generating Real-world Ambispective data to Study Participant Treatment... read more →
PAB Members Have Both Experience in Healthcare and Patient Advocacy October 27, 2022, London, Ontario, Canada—To enhance the patient voice in real-world studies, Pulse Infoframe, a company that specializes in... read more →
Shattering Rare Disease Registry Recruitment Targets with PIP-UK Real-world data from registries and other real-world evidence sources remain a fertile ground of opportunity for advocacy groups and biopharma companies to... read more →
