Registry Portfolio

Pulse Infoframe Inc. / Registry Portfolio

A Variation of CACNA1C, a Rainbow of Faces, and a Love of Books: Ollie’s Story

Every parent loves to watch their child fly like a butterfly and discover the world. Although five-year-old Ollie’s variation of... read more →

Smiling child holding a heart-shaped sucker

The CACNA1C Community Registry Is Open for Recruitment

Timothy Syndrome Alliance and Pulse Infoframe are pleased to announce that the CACNA1C Community Registry is open for worldwide recruitment.... read more →

Launching BIRT — The BHD Syndrome International Registry

The Myrovlytis Trust is creating a patient registry for Birt-Hogg-Dubé Syndrome (BHD) to better understand the epidemiology of the disease,... read more →

March 15, 2022
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2024 Pulse Infoframe Inc.

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