by Joe Ternullo Patients as Partners conferences are the only conferences in the US and Europe dedicated to demonstrating how... read more →
by Joe Ternullo I just returned from Rare Disease Week on Capitol Hill, a spectacular and unique event that Pulse... read more →
Eleven centers to capture patient-reported outcomes about rare form of eye cancer March 4, 2019, Oxford, England & Conshohocken, PA... read more →
This summer, Pulse welcomed: Friedreichs Ataxia Research Alliance (FARA), a non-profit organization dedicated to curing Friedreich’s Ataxia and the related ataxias. The... read more →
Supporting this growth, Pulse Infoframe has added more specialist staff and moved to new, larger offices to better support its clients. In... read more →
We have some exciting updates on two Pulse Infoframe registries. Pan-Canada Cancer Registry The success of the Canadian Melanoma Research Network,... read more →
Proving the power of global collaboration, the Castleman Disease Collaborative Network, an initiative dedicated to accelerating research and treatment for Castleman... read more →
Empowering 76,000 Clinicians in Australia With New Patient Insights The voice of NSW's 7 million citizens is rising thanks to... read more →
Patient Portals, Evidence-Based Patient Reported Outcome Measures, Health Registries, Real Time Analytics, & Data Visualization Capabilities Offering Augments Member Benefit... read more →
Partnership to Result in Real Time Data to Inform Policy Makers, Advance Research and Benefit Those Living with Melanoma (North... read more →