We have some exciting updates on two Pulse Infoframe registries.
Pan-Canada Cancer Registry
The success of the Canadian Melanoma Research Network, powered by Pulse and currently encompassing 10 major Canadian cancer centres of excellence, has resulted in a series of discussions to expand the registry to include breast, lung, prostate, and other cancers, transforming it to a powerful pan Canada cancer collaborative research network. At 2:50 to 4:10, see Dr. Scott Ernst, London Regional Cancer Program, present at the Global Melanoma Research Network and Real-World Evidence.
Preventing Sudden Cardiac Arrest in Children
Taking the lives of thousands of children every year, Sudden Cardiac Arrest is the #1 killer of student athletes. Research shows that heart screenings, coupled with a good medical history and physical exam, are effective at detecting heart conditions and preventing sudden cardiac arrest. Simon’s Heart has screened over 18,000 children for undiagnosed cardiac disorders and changed over 120 lives. The data and images collected in the Simon’s Heart national youth cardiac registry are made available to qualified researchers free of charge.