Webinars

Pulse Infoframe Inc. / Archive by Category Webinars

Life Science Intelligence: USA 2022

https://youtu.be/alcE_FiOkAc Pulse Infoframe | Femida Gwadry-Sridhar, Founder & CEODr. Femida Gwadry-Sridhar is the founder and chief executive officer of Pulse Infoframe. Dr. Gwadry-Sridhar is a pharmacist, epidemiologist and methodologist with... read more →

April 7, 2022
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Webinars

What are the 5 key ingredients to a rare disease registry?

https://www.youtube.com/watch?v=8lN9cJ841wA&list=PLQbiN4husqo975yJFrtk6PYuachpvitr5&index=19 International Rare Disease Showcase, February 1-3, 2022You start with strategy first - know why you want this, even if you don’t know what it might look like Then you... read more →

March 21, 2022
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Webinars

8th European Tay-Sachs and Sandhoff Family Conference: Real World Data with Nina Liu

https://youtu.be/ngPxLuY6anE?t=11745 Cure and Action for Tay-Sachs CATS Foundation: 8th European Tay-Sachs and Sandhoff Family Conference - Day 2 (10 December 2021)

February 2, 2022
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Webinars

How to Start a Patient Registry: A Conversation

https://www.youtube.com/watch?v=aXPGeyOavPQ Why and how a small charity in the UK began an international patient registry for a rare disease. Visit https://pip-uk.org/ to learn more.

January 25, 2022
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Webinars

Patient Registries

https://www.youtube.com/watch?v=Thz9e7zxwpk Patient advocate and CATS Foundation co-founder Daniel Lewi shares his insights on the importance of a patient registry.

September 8, 2021
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Webinars

Patient Advocacy

https://www.youtube.com/watch?v=s1OvC-Xap-A Patient advocate and CATS Foundation co-founder Daniel Lewi shares his journey as a patient advocate.

September 8, 2021
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Webinars

Why quality data is a driver helping you bring a repurposed drug to market quicker

https://www.youtube.com/watch?v=mGtwX6CcKHs Drug Repurposing for Rare Diseases 2021, June 15-16. Brought to you by Findacure.

July 19, 2021
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Webinars

CDKL5 Patient Registry | A Platform Capturing Patient’s Journey and Patient’s Voice

https://www.youtube.com/watch?v=vwUBqCN1EP8 What is an international registry, and why is it important?

June 20, 2021
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Webinars

Uveal Melanoma Patient Registry | A Platform Capturing Patient’s Journey and Patient’s Voice

https://www.youtube.com/watch?v=awAYAgFhQDE Dr Femida Gwadry-Sridhar, Founder & CEO of Pulse Infoframe, will discuss the first global patient registry for uveal melanoma at the AOMA Summit (11am, 19 June). This registry hopes... read more →

June 20, 2021
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Webinars

The Endpoint: A Clinical Trial Podcast — Episode 6 — With Femida Gwadry-Sridhar

Femida Gwadry-Sridhar joins Liam on this week's podcast episode. Femida is the CEO and Founder of Pulse Infoframe. In this session we explore all things in the real world evidence... read more →

June 11, 2021
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Webinars

2024 Pulse Infoframe Inc.

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