https://youtu.be/alcE_FiOkAc Pulse Infoframe | Femida Gwadry-Sridhar, Founder & CEODr. Femida Gwadry-Sridhar is the founder and chief executive officer of Pulse Infoframe. Dr. Gwadry-Sridhar is a pharmacist, epidemiologist and methodologist with... read more →
https://www.youtube.com/watch?v=8lN9cJ841wA&list=PLQbiN4husqo975yJFrtk6PYuachpvitr5&index=19 International Rare Disease Showcase, February 1-3, 2022You start with strategy first - know why you want this, even if you don’t know what it might look like Then you... read more →
https://youtu.be/ngPxLuY6anE?t=11745 Cure and Action for Tay-Sachs CATS Foundation: 8th European Tay-Sachs and Sandhoff Family Conference - Day 2 (10 December 2021)
https://www.youtube.com/watch?v=aXPGeyOavPQ Why and how a small charity in the UK began an international patient registry for a rare disease. Visit https://pip-uk.org/ to learn more.
https://www.youtube.com/watch?v=Thz9e7zxwpk Patient advocate and CATS Foundation co-founder Daniel Lewi shares his insights on the importance of a patient registry.
https://www.youtube.com/watch?v=s1OvC-Xap-A Patient advocate and CATS Foundation co-founder Daniel Lewi shares his journey as a patient advocate.
https://www.youtube.com/watch?v=mGtwX6CcKHs Drug Repurposing for Rare Diseases 2021, June 15-16. Brought to you by Findacure.
https://www.youtube.com/watch?v=vwUBqCN1EP8 What is an international registry, and why is it important?
https://www.youtube.com/watch?v=awAYAgFhQDE Dr Femida Gwadry-Sridhar, Founder & CEO of Pulse Infoframe, will discuss the first global patient registry for uveal melanoma at the AOMA Summit (11am, 19 June). This registry hopes... read more →
Femida Gwadry-Sridhar joins Liam on this week's podcast episode. Femida is the CEO and Founder of Pulse Infoframe. In this session we explore all things in the real world evidence... read more →