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Building an International Patient Registry Webinar–with Pulse Infoframe
Jan 24

Building an International Patient Registry Webinar–with Pulse Infoframe

Patient registries are centralised databases that collect medical information about patients with a particular condition or group of conditions. Patient registries are often particularly valuable for rare diseases, especially international registries as they allow national boundaries to be transcended to capture information about scattered patient populations. This webinar shares the expertise and experiences of two Pulse Infoframe speakers, Femida Gwadry-Sridha and Joe Ternullo to help your patient group better understand what registries are, how they operate internationally and how they can be utilised effectively by your patient organisation.