Uncategorized

Pulse Infoframe Inc. / Archive by Category Uncategorized

From Patient Voices to Breakthrough Therapies: The Vital Role of the CDKL5 Registry in Drug Development and Patient Care

Patient-centric research is our passion In today's healthcare landscape, the patient voice has become an indispensable component of real-world research. By incorporating patient insights, including their preferences, studies can be... read more →

December 23, 2025
Ryan Sheedy
Blog, Uncategorized

Rethinking Natural History Studies: A Modern Approach for Biotech Innovators

How Pulse Infoframe’s healthie Platform Enables Agile, Patient-Centric, and Cost-Effective Natural History Studies (NHS). Executive Summary We are at a time when there is immense pressure to accelerate drug development... read more →

December 23, 2025
Ryan Sheedy
Blog, Uncategorized

Advancing GM2 Gangliosidosis Research: A Revolutionary Approach to Real-World Data Collection

Poster presentation at 20th World Symposium: A paradigm shift in collecting RWD for GM2 gangliosidosis. Collecting real-world data (RWD) for rare diseases, particularly GM2 gangliosidosis, has historically posed challenges. However,... read more →

February 8, 2024
Ryan Sheedy
Blog, Uncategorized

2024 Pulse Infoframe Inc.

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