Melbourne, Australia, July 20, 2020: It is estimated half the Australian population will experience a mental health disorder during their lifetime and one in five of the population had experienced a common mental disorder in the previous 12 months, according to a study conducted by the Australian Institute of Health... read more →
Jul
17
Jul
06
https://www.youtube.com/watch?v=EKgieiPGnG0 Patient registries—Does your population need one?
Jun
27
https://www.youtube.com/watch?v=I8SbtXpktH8 Learn about the CDKL5 Registry, International CDKL5 Disorder Database, & Connect CDKL5, and how they complement research goals. Q&A Panel will follow. Panel: Dan Lavery (Loulou Foundation), Helen Leonard (Telethon Kids), Amanda Jaksha (IFCR), Antonino Caridi (CDKL5 Alliance), & Femida Gwadry-Sridhar (Pulse Infoframe)
Jun
22
Front and center with the COVID-19 pandemic era is this question: How can we enable research to move forward while keeping patients who participate in studies and clinical trials safe? This requires minimizing exposure to the coronavirus. Continuing Studies and Clinical Trials Remotely These public health concerns have expedited a... read more →
Apr
30
With so much information whizzing by us these days because of the COVID-19 crisis, and with so many people posting pictures of themselves in #quarantine or #selfisolation, or talking about social distancing and then physical distancing, trying to keep straight what it all means is becoming increasingly difficult and confusing... read more →
Apr
15
London, Ontario, April 15, 2020: The impact of the pandemic on the mental health of the global population is unclear. For this reason, scientists at Pulse Infoframe are leading an online study to investigate the short-term and long-term impacts of the pandemic on the mental health of individuals and communities.... read more →
Apr
03
The crisis caused by COVID-19 affects different groups of people in different ways. One thing is certain: each of us is being forced to adapt to rapidly new circumstances and adopt new behaviors. For people living with a rare disease—many of them children—this virus makes life even more precarious than... read more →
Mar
24
https://www.youtube.com/watch?v=VXDS0mAOx2U Pulse Infoframe is a real-world evidence, health informatics and analytics company that combines technology and services to create engaging, efficient and sustainable data ecosystems. This video focuses on our patient registry and portal, just one of the available, cross-compatible modules in the heathie platform.
Mar
16
March 16, 2020 LONDON, UK and LONDON, CANADA Aparito, a company transforming healthcare by unlocking real-world patient data through mobile apps and wearable devices, and Pulse Infoframe, a leading cloud-based healthcare data insights company delivering a holistic solution to foster collaboration and answer complex research, statistical and economical questions have... read more →
Mar
03
https://www.youtube.com/watch?v=eYEmLaiVNic Registry Diversification — Building Sustainable Disease Registries to Accelerate Research and Improve Lives

