Pulse Infoframe specializes in generating real-world data (RWD) that can be used to create real-world evidence (RWE). In this article,...
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Like a hockey player to a gaping net, Nina Liu was drawn to the gap in important data that could...
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Narcolepsy is a sleep disorder whereby the body cannot properly regulate sleep and alertness. Common characteristics include excessive sleepiness, hallucinations,...
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At Pulse Infoframe, we have a sneaking suspicion about Dr. Femida Gwadry-Sridhar, our founder and CEO. We believe her favorite...
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To generate evidence, we need to understand the types of data that are important and available within the patient’s “real...
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When setting up a disease registry, there are several things to consider, such as choosing your registry type (for example,...
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Historically, research into rare diseases has been siloed and lacking in standardization. This has resulted in meaning overlaps, wasted time,...
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When you invest in a patient registry, you want it to remain viable for many years and ensure that your...
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When exploring the idea of establishing a registry for your organization, the prospect can be daunting and the options, seemingly...
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With individual rare diseases affecting such a relatively small proportion of patients globally, capturing effective data to aid with research...
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