By Dr. Femida Gwadry-Sridhar It is astounding when you think about rare diseases and then you hear about rare epilepsies.... read more →
Visiting a UNESCO World Heritage Site is an incredible experience. Last December, I visited Teotihuacán in Mexico. The pyramids in all... read more →
by Dr. Femida Gwadry-Sridhar The FDA recently released guidance on how to characterize real-world data (RWD). I am really glad... read more →
Pulse Infoframe specializes in generating real-world data (RWD) that can be used to create real-world evidence (RWE). In this article,... read more →
Like a hockey player to a gaping net, Nina Liu was drawn to the gap in important data that could... read more →
Narcolepsy is a sleep disorder whereby the body cannot properly regulate sleep and alertness. Common characteristics include excessive sleepiness, hallucinations,... read more →
At Pulse Infoframe, we have a sneaking suspicion about Dr. Femida Gwadry-Sridhar, our founder and CEO. We believe her favorite... read more →
To generate evidence, we need to understand the types of data that are important and available within the patient’s “real... read more →
When setting up a disease registry, there are several things to consider, such as choosing your registry type (for example,... read more →
Historically, research into rare diseases has been siloed and lacking in standardization. This has resulted in meaning overlaps, wasted time,... read more →
