In 2011, Dr. Femida Gwadry-Sridhar founded Pulse Infoframe to fill a research gap that neglected millions: an inability to collect standardized, useful real world evidence in rare disease, cancer, and chronic condition populations. To increase the usefulness of this data, researchers needed to combine it with more common forms of data, such as medical reports. Collecting such sensitive data also meant developing a platform that would follow stringent regulatory guidelines, that would make it useful to researchers and advocates around the world.
A History Grounded in Epidemiology
Real World Evidence
healthie™ is our flagship platform designed to support the collection of real world evidence that is structured to ensure research methods can be systematically applied to produce meaningfully comparable and reproducible results.
In addition, healthie™ enables the structured collection of data and can map it to Observational Medical Outcomes Partnership (OMOP), mCode, and others. We ensure the data captured allows for consented data-sharing permissioning across stakeholders and meets regulatory standards required by the FDA and EMA.
Deployed Around the World
Pulse Infoframe has offices in Canada, the United States, and Australia. Over 70 sites around the world are in process or have been deployed to help thousands navigate their journey toward finding effective treatments and critical answers for their disease or condition. Clients include patient and disease advocates, pharmaceutical and biotech companies, academic medical centers, and government bodies.