Dr. Gwadry-Sridhar is the founder and chief executive officer of Pulse Infoframe. Dr. Gwadry-Sridhar is a pharmacist, epidemiologist and methodologist with over 25 years of experience in clinical trials, health analytics, clinical disease outcomes, and registries.

Roger has over 25 years of experience in finance and technology building and leading high performing global teams and projects. He held senior executive positions at BlackBerry with global responsibility for finance operations leading projects to structure global operations work.

Mike brings over 35 years of technology executive experience. Previously, Mike was the CTO for QuantiaMD, VP of Engineering at Soliloquy Learning, and co-founder of the Mesa Group, a software product development company, which was acquired by Microsoft. Subsequently he served as a Software Development Manager for Microsoft Exchange.

Jean is a Principal at JF Campbell Consultants, a company whose mission to offer the non-profit health community and the for profit pharmaceutical and biotech industries, a wide range of services to enhance their mission and vision to better serve their constituents. With 17 years of experience working within the rare disease community to increase their visibility on the national and international healthcare scene coupled with advising the for-profit sector on the best way to interact with this community, JF Campbell Consultants has the knowledge, expertise and understanding to make significant connections that will improve the quality of life for this underserved population. 

Laurence is the founder and director of On The Pulse: an independent, strategic consultancy providing specialist insight to UK and global healthcare providers and multi-agencies on the development and rollout of patient activation campaigns in haemophilia and rare diseases. Laurence has extensive patient advocacy experience, having advised on and implemented a broad scope of community awareness, research and educational initiatives for commercial partners and third-sector organisations. 

Mark is the Board Chair of the DC based EveryLife Foundation for Rare Diseases, a science-based advocacy organization dedicated to accelerating biotech innovations for rare disease treatments through science-driven public policy. Mark is also the founder and Executive Director of the Ryan Foundation. Mark’s family’s journey has been documented on CBS 60 Minutes, CNN, Biography Magazine, Readers Digest in 13 languages around the world, Golf Digest, and numerous news outlets globally. 

Dr. Neena Nizar serves as Founder and Executive Director of the Jansen’s Foundation. Nizar is a TEDx speaker, a blogger, and a disability and inclusion advocate. Dr. Nizar is also a rare disease patient herself and a mother to two boys with Jansen’s Disease, and advocates for the authentic engagement of patient and caregiver voices in the drug development process for rare diseases

Dr. Feuer has a passion for working with individuals living with chronic medical illness as a clinical health psychologist, healthcare consultant, and speaker. Through her work, she helps patients live healthier, more resilient lives while coping with medical difficulties. She has experience with a wide range of medical diagnoses, and specializes in individuals living with the unique challenges of rare, ultra-rare, and/or genetic diseases. Dr. Feuer believes that health is more than just the sum of our physical ailments, and aims to help clients develop and increase an overall sense of well-being in their daily lives. 

Vicki is the founder and CEO of the Sleep Charity: a national award-winning organisation based in the UK.  Vicki set up the charity having experienced chronic sleep issues herself and recognising the need for evidence-based support.  She has had a number of research papers published, is a TEDx speaker and regularly appears in the media.  Vicki is on the Board of the British Sleep Society’s Paediatric division.  She believes that sleep is not given the attention that it deserves and aims to empower with sleep education to help clients improve their own wellbeing. 

A renowned clinical geneticist at Boston Children’s Hospital and founder of Gerald Cox Rare Care Consulting, LLC. Cox served as the Vice President of Clinical Development for Rare Diseases at Genzyme (now Sanofi), overseeing the clinical development of enzyme replacement and substrate reduction therapies for lysosomal storage disorders. He also held the position of Chief Medical Officer at Editas Medicine.

Professor Emeritus of Public Policy at the University of Southern California, renowned for his consultancy work with prominent organizations such as Amgen, Glaxo SmithKline, Pfizer, and Novartis. Dr. Nichol’s has published extensively on topics such as cost-effectiveness of pharmaceutical interventions, health care cost and resource utilization, medication and therapeutic persistency, and health utility measurement.

Founder and managing director of Triallism GmbH, with over three decades of clinical research experience, including extensive tenure in the development pharmaceutical industry. Dr. Giorgino has held roles at Azafaros B.V.,  Helsinn Group and Actelion.

A distinguished life sciences consultant specializing in rare diseases, notable for her leadership in critical initiatives for NHS England, led the UK National Institute for Health and Care Excellence (NICE) Highly Specialized Technology program which evaluates medicines and technologies for rare and ultra-rare conditions. She brings over 25 years of experience working in  healthcare research, infrastructure, and market access strategy.

VP of Clinical Development and Medical Affairs at LG Chem Life Sciences & Chief Medical Officer at Eloxx Pharmaceuticals. Dr Hariri has also served as the Global Project Head for Sanofi and spent time in clinical development at Takeda and Ionis while being a practicing nephrologist.

Kathleen worked in the biotech industry for the last 20 years managing relationships within the rare disease patient community while working at Sanofi Genzyme.  Prior to that, she worked as a licensed clinical social worker in pediatrics at Tufts Medical Center. Her deep commitment to patients, rare diseases, and supporting the patient community while also trying to bring innovation and new technology remains a priority.  Working in Patient Advocacy at Pulse is a perfect match supporting those two priorities.

Alaa is a results-driven Project Coordinator with a Master’s in Global Health, skilled in coordinating cross-functional teams, managing timelines, and aligning deliverables with strategic objectives. With a background in pharmacy and experience in the pharmaceutical industry, Alaa combines industry knowledge with strong communication and problem-solving skills to foster collaboration and ensure seamless project execution

Joshua’s expertise is in building relationships and fostering collaboration across diverse groups of stakeholders, with a specific focus on supporting underrepresented populations and advancing the development of treatments for underserved diseases.

Dr. Rakibuz-Zaman is a medical graduate (Dhaka, Bangladesh) and epidemiologist (MSc in Epidemiology from the University of Western Ontario) with over 20 years of progressive experience working in clinical research, longitudinal cohort studies, public health and bio-specimen research (laboratory setting).

Juhi holds an MBA and a graduate certificate in Business Analysis and Customer Relationship Marketing. With over 4 years of cross-sector experience, she’s passionate about improving customer engagement and sales processes, and has led initiatives that enhanced client experiences and boosted growth.

Nikhil Sukumaran is an accomplished Quality Assurance and Regulatory Affairs professional with extensive experience in medical devices, pharmaceuticals, and healthcare technology. He has a proven track record in establishing and maintaining Quality Management Systems compliant with ISO 13485, FDA 21 CFR Part 820, and Health Canada regulations, as well as leading successful submissions including 510(k) clearances and other global regulatory filings. Skilled in cross-functional collaboration, risk management, and internal/external audits, Nikhil excels at aligning regulatory strategy with business objectives while ensuring strict adherence to compliance standards. His expertise spans real-world evidence generation, data integrity, and process optimization, enabling organizations to meet regulatory requirements efficiently while supporting innovation and product lifecycle management

Dan’s varied background in rare disease advocacy began when he and his wife founded the Cure & Action for Tay-Sachs (CATS) Foundation in the UK, after their daughter Amélie was diagnosed with Tay-Sachs. Dan has over ten years of experience in medtech and advocacy, and he has also served as Chairman of the European Tay-Sachs and Sandhoff Charity Consortium since 2012. Dan is fully aware of the patient voice, and he consistently puts patients and their needs at the forefront of clinical discussion.

Jenny has over 12 years’ experience in the clinical research arena and has a strong background in the management of clinical trials, ensuring data quality and compliance with regulatory standards. Jenny has worked across all study phases and various therapeutic areas, with a particular focus on Phase I/First in Human trials, psychedelic research, neurodegenerative diseases, stroke, and respiratory trials. Most recently, Jenny has led a programme of trials in neurodegenerative diseases with sites across Europe, US, Australia, and New Zealand.

Ryan graduated from Clark University with a Bachelor of Science in Business Management and Marketing and a Master of Business Administration. He has had prior marketing experience for creative agencies and consulting companies and was also a teaching assistant during his final year of undergrad.

Katie is a certified genetic counselor with over 10 years of experience in clinical care and research for rare diseases. She began her career in the Rare Disease Institute at Children’s National Hospital where she supported patients through diagnosis and long-term care as well as managed multiple clinical trials, natural history studies, and patient registries. Prior to joining Pulse, Katie worked in the pharmaceutical industry planning a clinical trial for an ultra-rare disease.

Jordan is a product and technology leader who has built and managed Product, Engineering, Data, and Customer teams from 0 to 1 at multiple companies across a variety of industries. For the past 8 years, his focus has been in healthtech. As the VP of Product at Cota, an oncology analytics company, he changed the way real world cancer data was stored, captured, and reported against. At Scene Health, a medication adherence company, he changed the way chronic diseases were tracked, annotated, and expressed for patients and health plans. He has his undergraduate degree from Tulane University, and his MBA from Quantic.

Elijah is a Software Engineer with over 7 years of experience, having worked as a software consultant across the educational technology and fintech sectors. His experience with both small startups and large-scale enterprises has equipped him with a broad perspective on solving complex technical challenges. He holds a Bachelor’s degree in Computer Engineering from the University of Ottawa. Elijah specializes in front-end engineering, streamlining engineering processes, and leading technical solutions from requirements through to execution.

Ray is equipped with over 5 years of experience in data analysis and data management. Ray has honed his skills in transforming complex datasets into actionable insights to drive decision-making and improve outcomes. His expertise encompasses advanced statistical analysis, machine learning, and the development of intuitive data visualization tools. Throughout his career, he has held pivotal roles that have allowed him to contribute significantly to research projects and optimize data quality and compliance. His passion lies in leveraging data to accelerate medical advancements, focusing on enhancing patient care and supporting the development of innovative treatments.

Yunus is a Software Engineer with nearly 5 years of experience developing software for the medical industry. He graduated from Western University with a Specialization in Computer Science. Yunus has also enjoyed leading teams as a project manager, and he possesses strong technical skills across the entire software development life cycle. His expertise ranges from the early stages of requirements gathering, system architecture, and UX/UI design to product launch and post-release support/maintenance.

Lili is a Senior UX/UI and Product Designer with over six years of experience, specializing in user-centered design, design strategy, and product research. She has worked across various industries, including family care, fintech and banking, leading design initiatives that drive innovation and enhance usability. With a passion for creating seamless digital experiences that align with business goals, she excels at transforming complex data into intuitive solutions. Currently, she is a Senior Product Designer at Pulse InfoFrame, where she focuses on designing impactful, data-driven platforms.

Ali is a Software Engineer with over five years of experience delivering web applications in collaborative, product-led teams. He has worked in varied settings, developing a quality-first approach to solving complex problems. His experience spans data-driven platforms with a sustained focus on usability, quality, and security. He holds an M.Sc. in Information Technology Engineering and is motivated by contributing to projects that make a clear, practical difference.

Erica graduated with an advanced diploma in Computer Programming Analyst at Fanshawe College along with a Bachelor of Arts. She worked as a database analyst for 5 years in the financial field before she developed a strong passion for software engineering.

Nivek is a student at Fanshawe College’s Computer Programming & Analysis program, currently interning through the Fanshawe co-op program. Coming from a background of CRM development for local London small business & retail, they have experience with full stack web development and quality assurance. Nivek is passionate about performance, accessibility, and is always looking for new music to listen to while they work.