We are excited that Chasing My Cure: A Doctor's Race to Turn Hope Into Action is NOW AVAILABLE everywhere books are sold! The University of Pennsylvania’s Dr. David Fajgenbaum, Pulse... read more →
Recently, the National Kidney Foundation announced its intent to develop the first-ever patient registry for chronic kidney disease. Below, Pulse Infoframe CEO Dr. Femida Gwadry-Sridhar interviews the National Kidney Foundation's... read more →
In July, Pulse Infoframe CEO Dr. Femida Gwadry-Sridhar chaired the 10th Annual Orphan Drugs & Rare Diseases – West Coast Conference in San Francisco and delivered a keynote talk on... read more →
We’re excited to share that Dr. David Fajgenbaum, a friend and collaborator of Pulse InfoFrame and PI of the ACCELERATE registry which is powered by Pulse, is sharing his amazing... read more →
Patient-reported data will help inform research in rare form of eye cancer Immunocore Limited, a leading T cell receptor biotechnology company, and Pulse Infoframe, Inc. (Pulse), a data aggregation and... read more →
Here are a few highlights of our travels from the past few months. Dr. Durhane Wong-Rieger (L), President of the Canadian Organization for Rare Disorders (CORD), and our Dr. Femida... read more →
Several of our clients have celebrated some huge successes this season. Take a look! Simon’s Heart Since 2011, Simon's Heart has advocated for the Sudden Cardiac Arrest Prevention Act. In... read more →
Our staff has grown in recent months as we help more organizations use real world evidence to find effective treatments for rare diseases. Paul Ferraiolo: Chief Innovation Officer Paul brings... read more →
Our newest customers provide further examples of how real world evidence (RWE) in healthcare is used. National Kidney Foundation Patient Network The National Kidney Foundation just announced the first-ever interactive... read more →
Pulse Infoframe joins forces with National Kidney Foundation to develop the NKF Network, a powerful new resource poised to spur breakthrough collaboration and improve the quality of people's lives. The... read more →
