https://www.youtube.com/watch?v=jRfPtBnur1s Building on the success of our most recent webinar on Patient-Reported Outcome Measures (PROMs), our August webinar will expand on the topic of PROMs, delving deeper into the realities... read more →
https://www.youtube.com/watch?v=Wg-Bx8H1-j4& Daniel Lewi (CATS Foundation), Ellen Haf Davies (Aparito), and Femida Gwadry-Sridhar (Pulse Infoframe) discuss their experiences using rare disease patient data to drive research forward. Streamed on 29 July... read more →
July 20, 2020 — Robert Iannone, Executive Vice President, Research and Development and Chief Medical Officer at Jazz Pharmaceuticals Narcolepsy is still a widely misunderstood and under diagnosed disorder. Sadly,... read more →
Melbourne, Australia, July 20, 2020: It is estimated half the Australian population will experience a mental health disorder during their lifetime and one in five of the population had experienced... read more →
https://www.youtube.com/watch?v=EKgieiPGnG0 Patient registries—Does your population need one?
https://www.youtube.com/watch?v=I8SbtXpktH8 Learn about the CDKL5 Registry, International CDKL5 Disorder Database, & Connect CDKL5, and how they complement research goals. Q&A Panel will follow. Panel: Dan Lavery (Loulou Foundation), Helen Leonard... read more →
Front and center with the COVID-19 pandemic era is this question: How can we enable research to move forward while keeping patients who participate in studies and clinical trials safe?... read more →
With so much information whizzing by us these days because of the COVID-19 crisis, and with so many people posting pictures of themselves in #quarantine or #selfisolation, or talking about... read more →
London, Ontario, April 15, 2020: The impact of the pandemic on the mental health of the global population is unclear. For this reason, scientists at Pulse Infoframe are leading an... read more →
The crisis caused by COVID-19 affects different groups of people in different ways. One thing is certain: each of us is being forced to adapt to rapidly new circumstances and... read more →
